KTBS5h
Texarkana boy battling rare disease prepares for life-changing transplant
TEXARKANA, Texas - A Texarkana, Texas boy battling a rare genetic disease is preparing to head to Arkansas Children's ...
Acsh.org15h
Rare Diseases Are Neglected. The FDA Needs A Dedicated 'Center of Excellence for Rare Diseases'.
The FDA has made some modest efforts, but it needs an internal organization that understands and would be an aggressive ...
'I'm a doctor - know signs of rare cancer that nobody talks about'
Use precise geolocation data and actively scan device characteristics for identification. This is done to store and access ...
'I'm a doctor - these are signs of rare cancer that is often missed'
Use precise geolocation data and actively scan device characteristics for identification. This is done to store and access ...
Sickle cell disease is a genetic disorder that causes lifelong suffering – here’s what you need to know
Accumulation of clots causes some of the most severe symptoms of sickle cell disease, including strokes, kidney failure, ...
Chan grad stands up to rare genetic disease
Joleen Plekkenpol of Chanhassen woke up one morning with a “flat” foot; something was wrong with the ligaments. And gradually, this loosening of her joints and ligaments moved ...
Fred Hutch4d
Skin in the game: Changing the story of Merkel cell carcinoma
Paul Nghiem, MD, PhD, and the Nghiem Lab have championed innovations in MCC treatment, delivering new treatment options, ...