Epidermolysis Bullosa (EB), or butterfly disease, affects 1 in 50,000 people, causing fragile skin that blisters easily, often likened to the delicacy of butterfly wings.

The FDA has made some modest efforts, but it needs an internal organization that understands and would be an aggressive ...

Argyria is caused by a buildup of silver in the body, which discolors the skin. Symptoms: The main symptoms of argyria are the skin developing a bluish-gray or gray tint, the fingernails growing ...

LIG4 syndrome is an exceptionally rare disorder caused by a genetic mutation that prevents the body from repairing damaged DNA.

Sanofi and Regeneron's Dupixent has become the first biologic drug to show activity in prurigo nodularis (PN), raising the hope of a new treatment option for the rare and highly debilitating skin ...

Mayo Clinic researchers have identified a targeted therapy that could bring relief to people living with lichen planus, a chronic inflammatory skin condition of the skin, hair, nails, mouth and ...

D.C.’s Vanda Pharmaceuticals Inc. has locked in a deal with a West Coast biotech to commercialize a drug for a rare skin ...

New Delhi: Finally, there is some hope for patients suffering from rare and life-threatening skin disorders, as the existing national policy for rare diseases, which currently covers 63 conditions ...

DEBRA Research and LEO Pharma enter strategic partnership to advance treatments for rare skin diseases: Munich, Germany Thursday, February 6, 2025, 10:00 Hrs [IST] DEBRA Research ...

royalty-bearing license to its technology for use in select rare skin diseases and for the right to use its proprietary formula for Netherton Syndrome. Netherton Syndrome is a hereditary disorder ...

Skinvisible has recently developed formulations for the potential treatment of obesity, along with over forty dermatology related conditions including rare skin disorders. For further details ...